February 26, 2009

Epocrates App for iPhone Highlighted on Scoble Video

This blogpost was originally posted at: https://etechlib.wordpress.com/

I heard about this video via Scoble in Twitter, and could not find it in his Friendfeed stream to comment. So, commenting here, and hoping a few folks will enjoy hearing about it.

Epocrates is an immensely popular and useful application in healthcare that has been around for ages.

Epocrates: www.epocrates.com/

Epocrates

It was one of the first widely adopted healthcare mobile applications when PDAs first became popular. The earliest mention of Epocrates for handheld or mobile devices was in 2002 in this article, with earlier related articles about its development in the previous year.

Clinician use of a palmtop drug reference guide.
Rothschild JM, Lee TH, Bae T, Bates DW.
J Am Med Inform Assoc. 2002 May-Jun;9(3):223-9.

In my opinion, Epocrates contributed significantly to the adoption of mobile devices by healthcare professionals. The original Epocrates was basically a drug database, although this has since expanded to many other useful reference tools. The original free portion, what is now known as EpocratesRX, is is still free — "Free comprehensive handheld drug guide for Palm, Windows Mobile, iPhone, and BlackBerry."

Well today's news is not that Epocrates is now available for the iPhone — that was announced at the beginning of the month. At this point I tend to assume that Epocrates will always be available for whatever are popular mobile platforms. I shouldn't, but, well, it's Epocrates! It will always be there! And I am delighted to see it available on the iPhone, since our local hospital is having some (ahem) challenges making iPhones easy to use within the hospital. Hopefully this will drive a solution. (I've been working on a post about medical apps for the iPhone/iTouch, but am waiting to be able to actually use my iTouch at work!)

What caught my attention today is this new video from Robert Scoble in which a Stanford clinician enthusiastically demonstrates the usefulness of Epocrates on the iPhone. Now, Wordpress tends to eat embeds, so I am going to try this, but am giving the link as well as the embed code, just in case. Be forewarned, the video is over a half hour long.

FastCompany: Stanford Doctor Demonstrates How He Uses Epocrates: http://www.fastcompany.tv/video/stanford-doctor-demonstrates-how-he-uses-epocrates



Posted by pfa at 10:21 PM | Comments (0)

January 10, 2009

WATCH THIS - Obama Healthcare Reform Community Meeting In SL - Youtube Report

The Obama-Biden Transition Team has been asking for feedback, input, and information from a large number of stakeholders and communities on important issues. On December 5th Tom Daschle put out a request for citizens to host community meetings on Healthcare Reform to provide input to the Transition Team. The following video is a brief overview (4 minutes) of a 3 hour community meeting in the virtual world of Second Life. It highlights comments from a few of the participants from divergent areas of the USA, describes the context and process of the event, and explores how the use of social media made the discussion more inclusive of people who might otherwise not be able to participate. I encourage you to watch this video.

Posted by pfa at 11:22 AM | Comments (0)

January 07, 2009

Mobile Healthcare Education

I just stumbled on an old message I had missed that mentioned this presentation. Entirely my fault that I hadn't seen this sooner!

This is a very intriguing approach to using Twitter, mobile technologies, cell phones and related tools to fill academic functions. This ranges from emergency callouts to managing class activities and assignments. Extremely interesting!

Posted by pfa at 07:26 PM | Comments (0)

January 05, 2009

What I Did On My Winter "Break"

Obama, Obama, Obama ....

Did anyone else get involved with local community meetings for the Obama-Biden Healthcare Transition Team? Oh, you didn't hear about them? When I tell folks what I did for the past couple weeks, I hear from a lot of folks who weren't aware of Daschle reaching out to the American people for thoughts on how to improve healthcare in the United States.

Obama Transition Team - Daschle Healthcare Reform

Join the Discussion: Former Sen. Daschle responds on health care: http://change.gov/newsroom/entry/join_the_discussion_daschles_healthcare_response/

This initial discussion in early December was a provocative and interesting event itself. Daschle answered questions about many leading healthcare policy concern, the video was made widely available online, and public discussion ensued.

Obama: Daschle Healthcare Reform Discussion

After about 3500 comments, they started to analyze the discussion (after five thousand or so, they closed comments). One of the tools used was Wordle, which distilled out the 100 top words used in the conversation. Notice the biggest one? Insurance. I don't think that is a surprise to anyone, but I am surprised by some of the words I don't see present -- access, transportation, information, choice, rural, seniors or elderly, and much more. Some words are present, but a lot smaller than I expected -- children, change, available, service/services, free, etc. Oops - etc was present in the Wordle as a word, which sort of skews the results -- this would have been more useful with a filter to exclude generic words like etc, enough, done, going, getting, and such.

Obama Transition Team - Daschle Healthcare Reform

Top 100 Words in Healthcare Discussion (from Wordle): http://change.gov/page/-/images/wc_healthcare_full.PNG

Well, the upshot of all this was that on December 5th, Daschle put out a call for USA citizens to partake in the discussion through small group discussion events hosted in your local community. These were all to take place between December 15th and December 31st. Personally, this put a big hole in my so-called "break", but it was important to happen and important to partake when possible. I just wish the timing had been a little different.

Daschle asks Americans to help reform health care: http://change.gov/newsroom/entry/daschle_asks_americans_to_help_reform_health_care/

Most of these took place in people's homes. Most of the events I heard about happened through personal networks - sort of work of mouth from friend to friend. They were not necessarily open to the general public or to walk-in visitors. As a single parent of a special needs kid (you've heard this before if you read this blog often), getting out and about town is hard for me. Basically, not likely to happen. I don't think I was invited to any of the events in people's home. Some of my friends were, but they had so many obligations relative to the holiday season that they did not participate. I was thrilled to hear about first one, and then later two more events that were happening through social media.

The first event was for the autism community and was held via Twitter. This wasn't the only event for the autism community - there was another on Staten Island and in Virginia (see comments), and probably more I didn't find out about. The Twitter one was organized through Causecast, a sort of a social network for "registered 501(c)(3) non-profit" organizations. But I couldn't go to Virginia or New York, and wouldn't have even if the events have been open nationally. In theory, I could have sponsored an event locally in Southeastern Michigan, and probably could have gotten some folks to come. Still, there are a lot of people on the spectrum who are not very comfortable in social situations and who would either have felt excluded by the venue or found it stressful to participate in real life. Having an event online made it possible to include a broader range of participants, with some interesting discussions that happened specifically about the geography of access to care for autism treatment. This type of discussion would have been unlikely or impossible in a face-to-face event. You can read more about the Autism & Healthcare Reform Twitter Day in another blog post.

Autism & Healthcare Reform - The Twitter Event for the Obama-Biden Transition Team: http://mblog.lib.umich.edu/etechlib/archives/2009/01/autism_healthca.html

Because the organizer of the autism event (@TannersDad) describes himself as a "paper and pencil" kind of guy, and because after several nudges no one else volunteered, and because I believed it was important, I ended up being kind of behind the scenes tech support to try to archive the tweets for the event (with help from @ajturner). I finished up everything for them on January 2nd.

In between, there were two more events, both in Second Life. The first one was held on December 29th in Port Spinoza, coordinated by Siri Vita (one of my neighbors in SL), and was an open general meeting about healthcare reform without a specific target audience. The event was held primarily in voice (audio over the internet within Second Life) and was videotaped. There is actaully going to be a really wonderful video of the event for the Obama Transition Team, which I will share when it becomes available.

SL: Port Spinoza: Obama Transition TeamSL: Port Spinoza: Obama-Daschle HC Transition Team
SL: Port Spinoza: Obama Transition TeamSL: Port Spinoza: Obama-Daschle HC Transition Team

For that event, I helped out by offering voice-to-chat transcription in order to make the even more accessible to people with disabilities, and Cotton Thorne (another neighbor) did the reverse -- read chat comments into the voice record for the event. This made it possible for people with a blend of sensory abilities to be able to attend as full participants and still have a complete record of the event. To make it even more fun, there were a lot of Justice League members who attended. After all, they work hard to help keep life smooth for people, both in fiction and in Second Life, and like all good hearted people are well aware of the importance of health and healthcare in making a good life possible. (My son was really excited to see the Green Lantern there, who shared with us that he has heard there will be a live-action Green Lantern movie coming out in the next 3 years.) They were back in for the final closeup shots for the video on Sunday for a couple hours, just for color, with the original event having lasted well over two hours. I was glad the Sunday event was in the afternoon, since the first SL Obama event was timed for the West Coast crowd, making it after 1am before I was able to go to bed.

The final event in which I participated was specifically for the large community of people with disabilities in Second Life and occurred on December 31st in the evening. The structure of the event was very different - they had small groups at several different tables, with a group of coordinators and facilitators -- they had a greeter, a couple guides, a facilitator at each table, and a timekeeper who clocked the discussion questions and kept the various groups on task and on target. The facilitator at my table old us she was deaf, and that this was why we needed to converse in chat (typing). My arms were still sore from all the typing the other night, which maybe slowed me down a bit. This was the first time for me that I was able to participate as a participant instead of as organizational help and background support.

I can honestly say I learned a lot from participating in all three events, and cannot imagine how the information from a nationwide clustering of these types of events will pull together for the transition team. Talk about an embarrassment of riches! I will be reporting out in future blogposts about some of my thoughts and observations from being part of these events. One of the biggest take-home points for me is what I've said about both accessibility and healthcare for years -- there is NO one-size-fits-all.

Posted by pfa at 12:19 PM | Comments (0)

January 02, 2009

Autism & Healthcare Reform - The Twitter Event for the Obama-Biden Transition Team

Crowdsourcing at its most relevant, this is about the outcomes of the innovative community discussion held for the autism community via Twitter on December 23rd 2008 in support of the initiatives of the Obama-Biden Transition Team under the oversight of Tom Daschle. Links listed at the bottom are from the slides.

Part One includes introductions, challenges, wishes, and the importance of location in receiving care in the USA.
http://www.slideshare.net/umhealthscienceslibraries/autism-healthcare-twitter-day-part-1-for-the-obamabiden-transition-team-presentation/

Part Two includes discussions on service, insurance, and education.
http://www.slideshare.net/umhealthscienceslibraries/autism-healthcare-reform-twitter-day-part-2-for-the-obamabiden-transition-team-presentation/

Part Three includes research, resources discussed in the event, and suggestions for governmental involvement or oversight.
http://www.slideshare.net/umhealthscienceslibraries/autism-healthcare-reform-twitter-day-part-3-for-the-obamabiden-transition-team-presentation/

LINKS

Where It Started

Autism & Health Care Twitter Day, December 23, 2008Autism & Health Care Twitter Day, December 23, 2008

http://autism.about.com/b/2008/12/30/best-of-2008-for-the-autism-community-your-ideas-requested.htm

In-Home Services

This was a provocative topic to many of the people involved in the event, as that awareness of the possibility of assistance for provision of in-home services was minimal, and awareness that parents could be paid for providing in-home care to their disabled child in place of out of home employment was entirely new to most. The parent who was doing this, Bonnie Sayers, provided extensive information and resources about it. Further digging revealed that this is possible in only a few states in the country: California, Massachusetts, North Carolina, Pennsylvania and Wisconsin (State-Based Initiatives to Improve the Recruitment and Retention of the Paraprofessional Long-Term Care Workforce).

California: Department of Developmental Services: Information About Regional Centers: http://www.dds.cahwnet.gov/RC/Home.cfm

California: Department of Social Services: In-Home Supportive Services: http://www.dss.cahwnet.gov/cdssweb/PG139.htm

State-Based Initiatives to Improve the Recruitment and Retention of the Paraprofessional Long-Term Care Workforce (Institute for the Future of Aging Services, Paraprofessional Healthcare Institute): http://aspe.hhs.gov/daltcp/reports/pltcwf.htm

US. DHHS. In-Home Supportive Services for the Elderly and Disabled: A Comparison of Client-Directed and Professional Management Models of Service Delivery (Doty et al): http://aspe.hhs.gov/daltcp/reports/ihss.htm

United Domestic Workers of America: Statewide Information on IHSS Wages, Contracts and Unions: http://www.udwa.org/statewid.htm

California Disability Community Action Network: IN-HOME SUPPORTIVE SERVICES (IHSS) ISSUES: http://www.cdcan.us/IHSS/index.htm

Protection & Advocacy, Inc: IHSS FAIR HEARING AND SELF-ASSESSMENT PACKET: http://www.pai-ca.org/pubs/501301.htm

Protection & Advocacy, Inc: IHSS ISSUES - PROTECTIVE SUPERVISION (Revised January 2000): http://www.pai-ca.org/pubs/527601.htm

Disability Rights, California: In-Home Supportive Services, Nuts & Bolts: http://disabilityrightsca.org/pubs/547001Index.htm

Research

Discussion about research made it clear that there is substantial lack of agreement about the causes and best practices for treatment for autism spectrum disorders. In addition, what information or medical consensus is available is largely unclear to the ASD community, especially parents making decisions for their children. The links below include information about proven, contested, unreliable, and emerging approaches that were discussed or mentioned during the event. There is no implied endorsement of any of the resources listed. There was a call from the ASD community at this event for coordination of research findings and dissemination of results in a coherent fashion to stakeholders.

Australian Government: Department of Health and Ageing: A review of the research to identify the most effective models of practice in early intervention for children with autism spectrum disorders: http://www.health.gov.au/internet/main/publishing.nsf/Content/mental-child-autrev-toc~mental-child-autrev-comp~mental-child-autrev-comp-che

Healing Threshholds: Autism: Novel Treatments for Autistic Spectrum Disorders: http://autism.healingthresholds.com/research/novel-treatments-for-autistic-sp

Chew, Kristina. Another Autism “Treatment”: Stem Cell Therapy. Autism Vox. July 12, 2007. http://www.autismvox.com/another-autism-treatment-stem-cell-therapy/

STEM CELLS: THE FINAL PIECE OF THE AUTISM PUZZLE? Age of Autism. July 11, 2008. http://www.ageofautism.com/2008/07/stem-cells-the.html

Stem Cells for Brain Injury Recovery? Age of Autism. January 2, 2009. http://www.ageofautism.com/2009/01/stem-cells-for-brain-injury-recovery.html

Ichim et al. Stem Cell Therapy for Autism. Journal of Translational Medicine 2007, 5:30. http://www.translational-medicine.com/content/5/1/30

2007 Fall Rimas Autism Dolphin Therpay (sic): http://www.youtube.com/watch?v=CMpunLzaccE

Hyson, Michael T. Dolphins, Therapy and Autism. Planet Puna, Sirius Institute: http://www.planetpuna.com/dolphin-paper-html/dolphin-paper.htm

Research Autism: Dolphin Therapy: Basic Level: http://www.researchautism.net/interventionitem.ikml?ra=64

Research Autism: Dolphin Therapy, Advanced Level: http://www.researchautism.net/interventionitem.ikml?ra=64&infolevel=4&info=researchstudiesincluded

Research Autism: http://www.researchautism.net/

Research Autism: Alphabetic List of Interventions: http://www.researchautism.net/alphabeticalInterventionList.ikml

Other Resources Shared

One of the blessings of the two Autism Twitter Day events has been the intense sharing of information and resources among the community members. While the resources were shared by autism spectrum disorder (ASD) community members for each other, the ones listed below were mentioned during the event for the Obama-Biden Transition Team, and may potentially be useful for decisionmakers seeking to better understand the needs of the ASD community.

Autism Hangout: Podcasts: Adonya Wong - "Key Learnings of Autism Thought Leaders": http://www.autismhangout.com/news-reports/feature-programs.asp?id2=80

Age of Autism: http://www.ageofautism.com/

Toast on the Ceiling: Where Was This Book When I Needed It?: http://toastontheceiling.blogspot.com/2008/12/where-was-this-book-when-i-needed-it.html

Sensory Processing Disorder Answer Book: http://www.amazon.com/Sensory-Processing-Disorder-Answer-Book/dp/1402211236/

Health Products for You: Posey Bed Canopy System: http://www.healthproductsforyou.com/catalog/products/4286/Posey-Bed-Canopy-System/

Causecast: Autism Health Twitter day Tuesday December 23rd ALL DAY Obama wants to know: http://www.causecast.org/member/tanners-dad/videos/4994-autism-health-twitter-day-tuesday-december-23rd-all-day-obama-wants-to-know

Easter Seals: Guide to Living with Autism [PDF]: http://www.easterseals.com/site/DocServer/Study_FINAL_Harris_12.4.08_Compressed.pdf?docID=83143

Act for Autism: http://actforautism.org/

Helen DeVos Children's Hospital: http://www.devoschildrens.org/?start

BellaOnline: Autism Spectrum Disorders Site: Purposeful Communication Techniques: http://www.bellaonline.com/articles/art59220.asp

Voice of America: Temple Grandin Turned Disability Into Asset for Animals: http://www.voanews.com/english/AmericanLife/2008-12-22-voa35.cfm

Temple Grandin: http://www.templegrandin.com/

Autism Speaks: Support Groups: Michigan: http://www.autismspeaks.org/community/fsdb/category.php?sid=27&cid=76

Wrong Planet: Could autistics become the majority in the distant future?: http://www.wrongplanet.net/postt86414.html

Wrong Planet: http://www.wrongplanet.net/

BellaOnline: Autism Spectrum Disorders Site: Book Review on puberty and hygiene for young people with autism: http://www.bellaonline.com/articles/art34042.asp

US Department of Education: Office of Civil Rights: http://ed.gov/ocr/ OR http://www.ed.gov/about/offices/list/ocr/index.html

Autism Risk & Safety Management: http://www.autismriskmanagement.com/

American Speech-Language-Hearing Association: Typical Speech and Language Development: http://www.asha.org/public/speech/development/

Autism Speaks: Interagency Autism Coordinating Committee (IACC) nears completion of Strategic Plan for Autism Research: http://www.autismspeaks.org/inthenews/dec_12_2008_iacc_meeting_recap.php

CauseCast: Tanner's Dad: http://www.causecast.org/member/tanners-dad

Final Thoughts

Twitter: Tweet: Autism & Healthcare Twitter Day

http://www.causecast.org/member/tanners-dad/blog_posts/505-for-one-day-in-december-there-was-peace-on-earth-and-goodwill-towards-families-dealing-with-autism-and-health-care?

Posted by pfa at 11:22 AM | Comments (0)

September 13, 2008

Torley Linden on Living With Asperger Syndrome

I've been meaning for a long time to do a substantive post on the amazing benefits of online social media and communities for persons on the autism spectrum. Well, it hasn't happened. I also have wanted to blog about the potent value of the support communities in Second Life for persons with health concerns. There is some overlap between these two topics, which I've been tracking. Ironically, earlier today I was working on the page about the Autism section of the SLHealthy wiki.

Today, these two topics came even closer and more unavoidable as a blog entry through the events at the Autism Society of American weekend, Bounce for Autism. I spent a lot of tiem there today, and took a lot of pictures. I want to blog about that, too, but it probably won't happen before the weekend is over, so go see it, don't wait for me to talk about it. One of today's presenters was Torley Linden, in the guise of his "alt" (which is actually probably his original avatar), gave a talk with slides on the topic of his life with Asperger Syndrome and how Second Life has benefitted him relative to this. It was pretty wonderful.

Because some folks were having difficulty with sound or voice, I offered to try to do a rough transcription, and later got permission from Torley to put this on my blog. I stripped out the backchat, because I did not have permission from all participants. He goes awful fast and says beautiful things (and I was having a small RL minicrisis during the transcription), so chances are very good that I missed some important things. Please note, hope springs eternal - Ravenelle captured video of the talk which will be posted in YouTube. :)

While I did not capture or transcribe the chat after the talk, I did capture the URLs shared, and have activated them as links below. In the question and answer section, I did capture the questions, but only used initials of the avatar asking, again to protect privacy of the people there.

Oh, and please notice his watermelon eyes ... More pics coming later, probably when I get to work and have a wired connection.

=====================

Torley Linden

[18:00] Crysta Laville: I ask all to please turn your mics off while Torley speaks so we dont hear you
[18:00] Torley Olmstead: yes Anaid
[18:00] Torley Olmstead: thanks Crysta :)
[18:00] Torley Olmstead: yes that's important
[18:00] Torley Olmstead: hehe
[18:00] Torley Olmstead: i love seeing gestures circulate...
[18:00] Torley Olmstead: it's one of my fave things
[18:00] Torley Olmstead: oh i have TOTALLY heard that Linden Time one before, oodles
[18:03] Brett Stand shouts: If I can have your attention please!
[lots of applause]
[18:05] Torley Olmstead: yes it's in voice
[18:06] Crysta Laville: Please everyone keep your mics off while Torley speaks
[18:06] You: Rod, would it help for someone to take notes in chat?
[18:06] You: I will do that
[18:06] You: he says embarassment is part of having Asperger
[18:07] You: pictures of him as a child
[18:07] You: stereotype of Asian kid who plays piano
[18:07] You: childhood strange behavior - not in sentences, kind of incoherent, odd behavior
[18:07] You: music helped him with phrasing and tempo
[18:08] You: need a sense of timing to tell jokes
[18:08] You: tends to race in speaking
[18:08] You: His mom read books about gifted children
[18:08] You: Went through rough times abefore 2nd life
[18:08] You: His wife reminded him to face the audience
[18:09] You: He was depressed in 2004 because his dad died and used to be a music producer?
[18:09] You: he has hyperacusis - distorted hearing
[18:09] You: this meant he lost his music career
[18:09] You: his main focal interest
[18:10] You: very depressing
[18:10] You: Read about transhumanism and cyberpunk
[18:10] You: He loves game Deus Ex
[18:10] You: He found Neil Stephensons's Diamond Age
[18:10] You: Neuromancer
[18:10] You: felt lonely online because he wanted to share these new loves
[18:11] You: New World Notes is what gave him intro to SL
[18:11] You: slide shows his first av
[18:11] You: he chose to focus in SL on skills that are struggles in RL
[18:12] You: socialized as much as possible
[18:12] You: chatboxes, sandboxes
[18:12] Ravenelle Zugzwang: Torley crashed but will be right back
[18:13] You: no - he crashed
[18:13] You: back!
[18:13] Torley Olmstead: sorry! crashed!
[lots of welcome backs, and comments about "Lindens crash?"]
[18:13] You: after all the socializing "crazy crazy crazy"
[18:13] You: he was using text viewer, thus crashed
[18:14] You: Met a lot of mentors
[18:14] You: corrected help guides, fixed errors
[18:14] You: by famous early leaders in SL
[18:14] You: helped with bug reports
[18:14] You: serendipitous path to becoming part of the community
[18:15] You: He thought LL folks were really cool people
[18:15] You: sent in a fan letter / resume
[18:15] You: talked about how SL had transformed his RL
[18:15] You: He did contracting for a while before becoming a fulltime employee
[18:15] You: Simple things that make a difference
[18:15] You: you feel emotions here
[18:16] You: you share things together, like gestures
[18:16] You: his gestures in RL are awkward
[18:16] You: personal space
[18:16] You: gestures help him learn
[18:16] You: there was a gesture bug that took away his gestures
[18:16] You: and he had to learn about them
[18:16] You: Being hired by LL has let him "amplify your awesome"
[18:17] You: such cool coworkers
[18:17] You: looking for and making tools to help you get things done
[18:17] You: lots of how tos
[18:17] You: Started video tutorials
[18:17] You: A great social moment
[18:17] You: a woman
[18:17] You: you see someone across the room
[18:17] You: your eyes meet
[18:17] You: Ravenelle ...
[18:18] You: "Ravie, please come up on stage"
[18:18] You: SL gives us opportunities in RL
[18:18] You: expotentially increase opportunities
[18:18] You: Torley loves watermelons
[18:18] You: Here is his sweetie
[18:18] Ravenelle Zugzwang: *waves*
[18:19] You: not enough emphasis given to real love stories - great friendships
[18:19] You: great stories
[18:19] You: when something really moves you
[18:19] You: tell them right away
[18:20] You: keep the love flowing
[18:20] You: facelights
[18:20] You: kind of maligned
[18:20] You: he helped get the fashion industry hooked on them
[18:20] You: transformative effect on our culture
[18:20] You: Another picture of Toryley and Rav
[18:20] You: better skies, suns, and moons
[18:20] You: ambassador for windlight
[18:21] You: romantic - share your hearts
[18:21] You: 650,000 images tagged SL in Flickr
[18:21] You: abt 15,000 mine ;)
[18:21] You: other creative things
[18:21] Torley Olmstead: http://torley.com/textures
[18:21] You: Torley textures
[18:21] You: all free
[18:22] You: He offers them for free,
[18:22] You: use them in yr builds
[18:22] You: they are on help island
[18:22] You: Creative photography
[18:23] You: he has taste for loud colors because of how his eyes perceive
[18:23] You: he learned where his weaknesses are
[18:23] You: learned to speak confidently
[18:24] You: he loves the great avatars here
[18:24] You: very beautiful
[18:24] You: encourage you to never stop being creative, never stop living SL
[18:24] You: carry it on
[18:24] You: concerned not with buzzwords (social media) but how to really connect with people
[18:24] You: last picture, next to last
[18:25] You: Here Island
[18:25] Torley Olmstead: http://torley.com/here
[18:25] You: A joke - "You are Here"
[18:25] You: all video tutorials there
[18:25] You: how to use click actions
[18:26] You: he answers questions
[18:26] You: type them in text
[18:26] You: Please type questions in chat
[18:26] You: It is super fantastic to be here
[18:26] Crysta Laville: Thx Torley for being a speaker tonight
[18:27] You: he'd have to see what anti-scam scripts are all about
[18:27] You: be sceptical
[18:27] You: of "get rich now"
[18:27] You: don't trust anti-lag scripts
[18:27] MC: this question came up in there.com the other day, do you object if people use the textures in other virtual worlds?
[18:27] You: Use Torley textures ANYWHERE
[18:27] You: totally open source
[18:27] [multiple people]: As a mother of an autistic child, what advice could you give parents to support their child to succeed as well as you have
[18:28] You: advice for parents: accummulation of small victories
[18:28] You: they get discouraged, look for the small victories
[18:28] You: his mom was nurturing, dad was Donald-Trump-esque - they balanced well
[18:28] You: don't compare too much to other people
[18:28] You: comparisons are useless
[18:29] You: unrealistic expectations
[18:29] You: such as to compare to Michael Jordan or Tiger Woods i
[18:29] You: don't listen to bullies
[18:29] You: he's been bullied a lot
[18:29] You: Have a happier first life and SL than not
[18:29] You: if tempted to snipe, try to be nice instead
[18:29] You: person by person - small victories
[18:29] CR: Torley: Do you think of Asperger's as a disability, or as being 'different' with no significant impairments? If the former, what would you consider to be your 'worst' AS-related disability, and how do you deal with it?
[18:30] You: come to his office hours for technical questions
[18:30] You: disability: not being able to relate to others, using body language, but flip side - he doesn't feel inhibited
[18:30] You: he just goes for it :)
[18:29] RH: Torley I have a very interesting question, if you have someone who is Autistic or is with Asburgers who is harrasing residents, is it okay to file ARs against them if they are persistant? That is to say, should they be treated like everyone else even though they have disabilities?
[18:31] You: first talk to people to understand who they are
[18:30] LM: Is Asburgers an excuse for being an intolerable poop face?
[18:31] You: even people with Aspergers need to be sensitive to community standards and communicating kindly
[18:31] You: even if you don't know how
[18:31] You: have a heart to heart to help
[18:31] You: do the humane thing
[18:32] You: there are bound to be communication barriers, we should aspire to transcend them
[18:32] You: I will reach out to you, will you reach out to me? keep trying
[18:32] RS: Q: I have been told you also suffer from a mild form of agoraphobia, is that missinformation, or if it's true, how has SL affected you. ---
[18:32] You: agoraphobia rumor is true
[18:33] You: anxiety in crowds when he was a child
[18:33] You: trying to come off as someone who wasn't a total freak
[18:33] You: the first few times I do something, I'll goof up, make horrible mistakes
[18:32] Milton Broome: Greetings Torley. In your opinion what is the advantage of Second Life over real life for people with Autism and Asperger’s?
[18:33] You: Don't. Give. Up.
[18:33] You: how we learn
[18:33] You: is to keep trying
[18:33] KM: Torley, what is the difference between Aspergers and High Functioning Autism?
[18:33] EA: is your opinion of where your weakneses are the same as what others view of what your weaknesses are????
[18:33] KK: does repitition sometimes help with understanding?
[18:34] You: what are teh benefits of SL for folks w/ Asp/Aut?
[18:34] You: you don't get all the emotional bandwidth, but it is safer, not a fear of phsycial violence
[18:35] You: allows you to focus on your obsessions -> glad addictions
[18:35] You: opportunity to share
[18:35] You: without feeling your are being stared at
[18:34] BG: How is the way you see colors different from most people's perception of them?
[18:36] You: Torley has keen grasp of dynamic edge with respect to colors
[18:34] CB: Is there help for people with Autisum & Asbergers in Teen SL?
[18:35] You: He would love to know more about TSL
[18:35] You: there are communities outside SL
[18:35] Torley Olmstead: http://wrongplanet.net
[18:35] MS: Torley, have you found, as you get more immersed in SL, that your AS has come to the fore as it would in RL? I find that as SL becomes more integrated as part of my RL, some of my issues have crossed the border as it were?
[18:36] shiney Sprocket: I'd say!
[18:36] You: there's always been a crossover between Asperger in SL and RL
[18:36] You: Some folk are interested because they have family
[18:36] You: Torley loves to help
[18:37] LM: Is autism a reason a 16 year old would expose themselves on camera?
[18:37] You: He can't talk about other people's motives
[18:37] KM: Torley, What is the difference between Austism and Asberger's?
[18:37] You: encourage people to do research and learn more
[18:37] MF: Why would you use poor pokeman as shoes?
[18:37] You: Pika-Shoe = Pikachu
[18:38] You: no actual Pokemon were harmed in the creation of these shoes ;)
[18:37] You: come to office hours for more answer to questions
[18:38] You: email is listed in his profile
[enthusiastic applause ensues and lasts for several minutes]
[18:38] You: followup followup followup
[18:38] You: share with a friend
[18:38] You: spread the goodness
[18:39] You: there are always problems, but there are not always solutions unless you help make them
[18:41] RH: Can I have your autograph?
[18:41] Torley Olmstead: hehehe
[18:41] Torley Olmstead: thanks so much each and everyone!
[18:42] Torley Olmstead: Rei what an awesome hat
[18:42] Torley Olmstead: EYE AND TONGUE OMG
[18:42] Torley Olmstead: aww shiney
[18:43] Torley Olmstead: yup hanging out!
[18:43] Torley Olmstead: i <3 awesome hats
[18:43] Torley Olmstead: i have this giant hat collection
[18:43] Torley Olmstead: it shall never cease
[18:43] Torley Olmstead: oh cool to know that re: textures Rei
[18:45] Torley Olmstead: http://filterforge.com
[18:51] You: Torley - would it be OK to share the portion of the chatlog that was trying to transcribe your voice talk?
[18:51] Torley Olmstead: sure Perplexity!
[18:52] Torley Olmstead: THANKS for helping
[18:52] You: Thank you very much!
[18:52] Ravenelle Zugzwang: I also took video and we hope to have that up soon
[18:52] You: Thank you, Ravenelle! I will watch for it
[18:57] Torley Olmstead: http://wiki.secondlife.com/wiki/Release_Notes/Second_Life_Release_Candidate/1.21 also
[18:58] Torley Olmstead: oh totally fine, Jaymes, what's the URL?
[18:59] JK: http://www.flickr.com/photos/masterjamie/2854127837/ --- Here you go, Torley. :)
[18:59] Torley Olmstead: thanx Jaymes!
[19:00] RH: Torley: http://www.youtube.com/watch?v=oKi-fkyAtg8 this is a interesting concept someone has for new in world features
[19:00] SS: http://veodia.com/ that is the site I used to stream various capture devices and webcams in SL.
[19:01] SS: Not to access it there Perplexity, to stream INTO secondlife from a camera.
[19:01] You: ah - oh, thanks!
[19:01] You: that is really useful
[19:01] You: veodia as a bridge
[19:02] Torley Olmstead: yeah have you seen the shadow-draft in Second Life :)
[19:03] Ravenelle Zugzwang: We did a video recently..let me find a link
[19:03] Ravenelle Zugzwang: http://www.youtube.com/watch?v=xBIdIiSY45U
[19:03] Torley Olmstead: KirstenLee Cinquetti
[19:03] Torley Olmstead: http://nwn.blogs.com/nwn/2008/09/behold-shadowdr.html
[19:04] You: thank you for all the links :)
[19:04] Ravenelle Zugzwang: it's not ready to go live, that is why it's considered in the experimental stage at this time
[19:08] JC: http://uk.youtube.com/watch?v=E48RG_m9OaY

Posted by pfa at 11:52 PM | Comments (0)