« I am looking for a video or audio tape ... | Main | First National Conference on Living with Facial Differences »
October 19, 2006
I am looking for a group or anyone who has Oral Facial Digital Syndrome ...
Q:
I am looking for a group or anyone who has Oral Facial Digital Syndrome.
A:
There are several different names for this condition. Searching by the various names might help you find more information.
Orofaciodigital syndrome
Oculo-dento-digital syndrome
Oculo-dento-digital dysplasia
oral facial digital syndrome
Cranio-Oro-Digital syndrome
Digital-Oro-Cranio syndrome
Juberg Hayward syndrome
We found one support group that seems to be related.
Oculo-Dento-Digital Dysplasia Support Group
8810 Orchard Road
Pikesville, MD 21208
Phone: 410.580.0882
URL: http://www.odddsupportgroup.com
Contact: aboutus@odddsupportgroup.com
Here is a selection of links to information that might be helpful.
FaceIt: Juberg Hayward: http://del.icio.us/faceit/juberg.hayward
Posted by pfa at October 19, 2006 10:26 AM