October 19, 2006
I am looking for a group or anyone who has Oral Facial Digital Syndrome ...
I am looking for a group or anyone who has Oral Facial Digital Syndrome.
There are several different names for this condition. Searching by the various names might help you find more information.
oral facial digital syndrome
Juberg Hayward syndrome
We found one support group that seems to be related.
Oculo-Dento-Digital Dysplasia Support Group
8810 Orchard Road
Pikesville, MD 21208
Here is a selection of links to information that might be helpful.
FaceIt: Juberg Hayward: http://del.icio.us/faceit/juberg.hayward
Posted by pfa at October 19, 2006 10:26 AM