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November 09, 2006

Need information for family of infant with severe oral and facial hemangioma ...

Q: Need information for family of infant with severe oral and facial hemangioma ...

A: Here is some information on planning dental care, finding financial resources, and more information.

Dental Care

It may not be an issue right now but the oral involvement of the condition may be significant. This will depend on the location and severity. It is strongly recommended that the child should receive an oral evaluation at age 1. Any dental work requiring block or infiltration anesthesia may be a problem for this child. Therefore, prevention is the key. Please consider tooth brushing using wash cloth or soft brush daily as soon as teeth are present. Give special attention to oral hygiene for this child.

Financial Information

Having a child with special needs can be overwhelming. The family should discuss their concerns and needs with a social worker who will likely know of resources. If help is needed to care for the baby or its medical treatments, the family should be able to get on Children's Special Health Care Services (a medicaid program). If the services are not covered, they should talk to Patient Relations who can assist them in obtaining charitable status. The child may also be eligible for Children Special Health Care insurance provided by the state, if they live in the United States. Typically, the physician who made the diagnosis submits the application on behalf of the patient. It takes 8 weeks or longer for review and approval. Family will be contacted to provide additional information during the review process.

For more information about financial resources, please see our web page on this topic.

Let's Face It: Financial and Insurance Information: http://www.dent.umich.edu/faceit/lifestyle/financial.php

More Information

First, take a look at the Let's Face It page on Vascular Birthmarks. (FYI, the recommended book, Gianna's Wild Strawberry, is about to be released in a second edition. Watch Amazon for more information!) If you want more information for patients, you might want to also look at the Resource page from the Hemangioma Treatment Foundation.

Posted by pfa at November 9, 2006 07:31 PM

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