January 31, 2010
2/12/2010 6:41 PM
After a lot of searching for the cause of the embolisms in my lungs, they found out how they got there.
I have blood clots in my legs, evidentallly more than anyone thought and they are breaking off and going to my lungs and literally taking my oxygen and breath away.
The fix is to load me up with heparin AND coumadin. This will stop new clots from forming. Then we have to achieve a level of medication that will keep this from happening again. It will probably take another week for this to happen. This also means oxygen for at least 6 months until we return here for follow-up tests. We will not let anyone in Naples do it. The pulmonary group in Naples did not go tests for clots. Where the clots came from is anyones' guess but they were there to be found by someone who knew what to look for.
The next thing we are going to do while we are here is to start to reduce my prednisone until I am able to get off it completely and see if the polymyalgia returns. I can then get the blood sugar levels more normal and cross that off my list of meds I don't need or want.
Next week is a course on how to reduce the insulin as I reduce the prednisone, and most likely some more blood tests, etc.
My liver is a very small concern and seems to be "healing" on its own most likely with the coumadin and insulin.
We have decided to return here every summer (more if they want us) to check all these developments out and see if everything is still on track. The doctors are more than willing to order blood tests have them faxed and then CALL US, YES THAT SAYS CALL US, USUALLY THE SAME DAY to discuss the results and treatment.
We continue to be amazed at the quality of caring, and care by these people. Today at 9:30 am i had the ultrasound of my legs and at 11:00 I was in the doctors office with the answer as to why I couldn't breathe when I got here.
One of the nurses told me that they won't let anyone go home until they have solved the problem. After 12 days of testing, we believe it.
Thanks again to all of our wonderful family and friends for your calls, e-mails and prayers. you helped make some difficult days tolerable and uplifting.
I will write again when we know how long it will be for sure until we are able to come home.
All our love, Judy and Walter
Posted by jaselin at January 31, 2010 08:20 AM